Below is an email that I sent today to a woman who was supposed to be helping our family in obtaining services for my son. My son was recently removed from a residential treatment facility by me. I chose to do this because they ignored the fact that he was psychotic. What is psychosis you say? Well, it's being out of touch with reality. It is what a mentally ill person looks like when they are "sick" and need hospitalization to re-evaluate medications and re-stabilize the brain and thought patterns occurring within it. The "treatment center" decided my son was just being weird/difficult, and that he didn't require any intervention. An hour later he attacked a staff member at the school located on the campus of the treatment center. Thank goodness no one was seriously injured. Instead of sending him to a hospital, they chose to have him arrested and placed in general population because he is 18 years old. Maybe the staff forgot they were working in a facility that supposedly treats mentally ill youth. Perhaps they forgot their training. Perhaps they hadn't any training at all and couldn't see the red flags. Perhaps they could just care less because he filled a bed and they could charge for him. Not sure myself. My son has the maturity level of a 9, maybe 10 year old, and his comprehension levels maybe even less than that. He spent 30+ hours in jail, and unmedicated. When I was finally able to bond him out he was suffering from withdrawal symptoms from his medications being with-held and was physically ill. When I tried to explain to the prison guard the need to get him to medical services, he sneered at me and said to have a seat, he may be released in maybe 6-8 hours. Deaf ears. Now I have him home with us. Why should I send him to "treatment" that clearly cannot provide "treatment". My son is not a criminal. He is mentally ill. It is a disease of the brain that I wouldn't wish upon anyone. He doesn't conjur things up...he lives in hell. He also has some physical problems. He is incontinent and while in "treatment" is made fun of everyday by fellow residents and staff alike. Everyone has a breaking point, mental illness aside. How long should we be treated as an animal before we begin to respond as one. Now he needs services and is being denied because he is seen as "too dangerous". If he were a crack addict, he could find services outpatient. If he were a drunk driver that killed a family, he could find services. If he had a brain tumor that was cancerous and causing erratic behavior, he would have the sympathy of the world and would find services. If you are mentally ill and 18, you're screwed. There is something wrong with this picture. Names have been omitted from the story below for obvious reasons, I wouldn't want to violate the confidentiality of the "supportive" personnel. If you can help in any way with locating a doc or a lawyer to help us, my thanks to you would be unending.
Hi "supportive services person". I just received a call from "my son's public defender" this morning regarding a message left for her by "another supportive services person". I also received a somewhat cryptic message from that same person yesterday. Although I did return her call, it was around 5pm, within 3 hours of her message being left, and I apparently missed her. Basically, from what "my son's public defender" told me, you all feel that my son is "too dangerous" to reside within my home in the community because of events that occurred
within treatment facilities. My question, and hers as well, is this..... Shall we return him to yet another treatment facility where he will be abused by other residents
everyday, and neglected by staff due to staff shortages, lack of training, etc, etc....or maybe we should return him to jail, where I am sure he will receive
stellar services to handle his illness. Everyone has a breaking point, mental illness aside, and when treated like a product where worth is only equal to the dollar value of housing and billable treatment hours instead of being treated compassionately as a human being, we all have the capacity to reach a breaking point.
"Supportive services chick" alluded to the fact that now even setting him up with a doc to maintain his medications may be in jeopardy because my son is "too dangerous". I would like to point out that we would be setting him up to fail, once again, by with holding treatment he SO NEEDS. Why is this so difficult to get him to the services he needs and furthermore, why are people who are supposed to be "supportive" making this process as difficult as possible? I already agreed to provide transport to and from offices, etc. As if it makes a difference where he is seen in regards to the safety of the community and staff, really? Regardless, I am willing to meet your terms but the terms are becoming quite impossible and ultimately lead to a neglect in caring for my son. Again, I find myself in a position needing to draw a line. If this is what all the directors of...and supervisors of...are gathering to tell me on Monday, please save the gas and time and I will do the same. I am interested in getting my son situated and this includes obtaining MEDICALLY NECESSARY services. If you all feel that cannot be done, then I guess I will wait until his meds run out and bring him to a hospital where he will be given a doc and they can handle it. It seems to me that this is being treated so backwards and has many weird, political/CYA (cover your asses) vibes about it. Does anyone remember that we are dealing with a mentally ill boy, not a case study to be discussed to death.
ANYONE can be seen as a danger to their community. Some one who drinks too much one night, some kid who is under the influence driving around, someone who has been jailed previously and has a rap sheet from 30 years ago, a drug addict in outpatient treatment, etc. The environment also needs to be taken into account. My son is residing within an environment that is peaceful, loving and non-abusive. My son is now living with people who actually care about him and his well-being, as well as the well-being of others-this includes our community. My son has an RN for a mother that not only deals with mental illness in her line of work, but has dealt with his illness for 18 years and knows it intimately. Do you really think I would take him out into the community when he wasn't doing well? After all of our very personal conversations do you really think I am that ignorant? My son has no history of being a run-away. I wouldn't expect it to start now. But it could happen, right? You all can sit around and "what if this" and "this could happen" to death, really, but no one seems to be looking at the PRESENT situation. My son is at home and thriving. The pictures he draws are no longer sad and dismal with words like "evil and hurt" within the drawing, instead the words written within the pictures now are of "family, love and hope". No wonder why so many people with mental illness end up on the street, unmedicated and uncared for. There is far too much time and effort spent on talking about it instead of doing something about it. Far too many obstacles to obtaining PROPER care due to protocol. Far too many human souls, children and adults alike, warehoused in so called "treatment facilities" that are understaffed, underfunded and certainly not worthy of being called a treatment facility. Maltreatment perhaps.
My son is lucky in that he actually has a family that is ready and capable of caring for him at this point and that he is not a DCFS kid lost in a miserable system of red tape and BS. He has the added benefit of having a Mom who will advocate for him and knows these waters, but I have to say, the waters that I once thought were calm are starting to show signs of storm brewing and I am treading very lightly. Since you, or the other supportive services person, or whoever -fill in the title here- is going to attend, cannot speak to me on Monday concerning my sons history because he is 18, and you need his consent, then we will need to reschedule. Odd, I signed how many consents for him when we first met with the other supportive services person last week, but okay, we'll play by the rules of the day. I would like to obtain guardianship to alleviate the "paper and privacy" issues, but that requires a doctor to interview him and deem it necessary in writing for the courts to grant me this...but he can't see a doctor because he is "too dangerous". GIVE ME A BREAK PLEASE. I don't enjoy chasing my tail over something that is so important. I am sure you all have other cases of where parents have no time for their kids and wonder why they are acting out to contend with and could focus your time there. So, honesty and a straight answer would be nice. If you cannot help us, then please say so. That's all I ask.
This person did call me personally and I have to say she is a pretty stand up woman. Her brother also suffers from mental illness so she understands more than most. Sadly, she also agrees with me but can do nothing to assist me because of protocol.
We take it day by day. Today, thank god, was a good day. We went grocery shopping while my Mother underwent some medical testing and I am happy to report that my son did not attack anyone. He did not run through the aisles stark raving mad. We simply picked out some good apples and decided what to make for dinner. Today was a good day.